Aaron’s Story

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Aaron was first diagnosed with a Cranio Pharyngiama brain tumour in 1999 at the young age of five. His condition was initially misdiagnosed by doctors when he was just a toddler at three years old.

Once his condition was confirmed, Aaron had his first operation to remove the tumours in 1999 and he started radiotherapy at The Royal Marsden Hospital in Sutton. After Aaron’s initial operation, the medical staff thought the tumour had completely gone, however over the years, Aaron has had to have various operations to ‘de-bulk’ cists.

After a craniotomy in 2012 (one day after his 18th birthday) Aaron’s life was turned upside down when he unfortunately lost his sight.

Aaron then met David Neil (who is supported by Teens Unite) at his local college who introduced Aaron to the charity Teens Unite, which helps those aged 13-24 with cancer and other life limiting illnesses. Since then, Aaron and David have remained close friends and often come to the workshops and days out organised by Teens Unite.

Aaron’s first experience of the charity was when he volunteered at Teens Unite’s annual ‘It’s a Knockout’ fundraising event and since then has come to regular days and workshops held both at the Teens Unite Respite Home and in London. Aaron feels that Teens Unite gives him more energy and confidence in himself. He loves the social side of Teens Unite and feels it is the only age appropriate charity for him.

Aaron’s first experience of the charity was when he volunteered at Teens Unite’s annual ‘It’s a Knockout’ fundraising event and since then has come to regular days and workshops held both at the Teens Unite Respite Home and in London. Aaron feels that Teens Unite gives him more energy and confidence in himself. He loves the social side of Teens Unite and feels it is the only age appropriate charity for him.

Aaron has now had four craniotomies and recently had 14 litres of fluid drained from his lungs and stomach. His last craniotomy was in August 2014 and due to complications he had to have his bone flap removed, which he is now waiting to be replaced. He now also has three shunts fitted.

Aaron is now on medication for the rest of his life and faces more radiotherapy on the existing tumours in his brain. Despite his life changing completely and losing his sight, Aaron is still so positive and enjoys life as much as he can. He often goes to music concerts and with the help of Teens Unite, he can have fun, meet others his age and act the same as other teenagers.